Then I met Sam Berns, the public face of progeria, a genetic disorder of childhood that accelerates body aging process. Sam passed away last January 10 at the age of 17.
“I didn’t put myself in front of you to have you feel bad for me. You don’t need to feel bad for me. Because I want you to get to know me. This is my life.” --Sam Berns
"Everytime I see Sam, it's some sort of a moment, he gets off the bus, it's a moment I treasure it." --Leslie Gordon
"There's a lot going on around us that we easily miss." --Scott Berns
October, 2013 Sam spoke at TEDxMidAtlantic regarding his philosophies for a happy life: Be okay with what ultimately you can't do instead focus on things you can do; surround yourself with people you want to be with and finally keep moving forward.
“No matter what I choose to become, I believe that I can change the world, and as I’m striving to change the world, I will be happy.” --Sam Berns
Sam Berns indeed is the epitome of a well lived life. Short but genuinely remarkable. RIP